Dancing in the Rain
Slideshow Image 1 Slideshow Image 2 " alt="Slideshow Image 3" /> src="http:>

A Trisomy 18 Journey

Life is not about waiting for the storm to pass. It's about learning to dance in the rain. -- Vivian Greene

Friday, March 29, 2013

Meet Guiliana

Today I would like to introduce you to Guiliana - or G, as she is affectionately called. G is two and a half and has mosaic trisomy 18. She is one brave, tough, strong little girl! She has overcome so much already -- heart surgery, gastrointestinal difficulties and surgeries, and bouts with RSV and pneumonia -- enough to challenge any kid! But she's still smiling! She eats orally (but has a back up g-tube just in case it's needed), is potty trained, is mobile, and is always stylish.  G's mom is a vital member of our trisomy community. She is full of great advice and offers support and encouragement to all. She is G's biggest cheerleader and advocate.  Jill and G -- we are so glad to know you! To catch up more with G, visit her blog at "Giuliana's Gift of Life."


L said...

G never fails to amaze me! :)

Post a Comment