Dancing in the Rain
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A Trisomy 18 Journey

Life is not about waiting for the storm to pass. It's about learning to dance in the rain. -- Vivian Greene

Thursday, February 14, 2013

Cohen at 9 Months

At 9 months I can...
- Crawl!!
- Pull to a standing position
- Explore
- Make big messes while exploring
- Wave
- Babble...loudly!
- Weigh in at 20 lbs!

- Mirrors
- Baths
- Kids
-Pretzel sticks

- Car seat
- Changing clothes
- Slippery floors (makes crawling difficult)

Happy 9 Months to my little Valentine!

Tuesday, February 12, 2013

Feb 12

One year ago today I met a beautiful little girl named Isabella. It was her two month birthday, and it had been nearly two months since we lost Julia. Isabella, like Julia, had trisomy 18. They looked very alike. They brought with them similar joys and similar struggles. Seeing Isabella made my heart full, and I loved her immediately. She was so expressive, so spirited, and so lovely. I also met Isabella's amazing parents, Patricia and Randy. Since that day, we have shared happy days and sad days, the highest of highs and the lowest of lows. Our little beautiful girls now play together, happy and whole, in a place where all is good. This is a hard and often lonely road that we walk. I am very thankful that if we must walk this road, we can at least do it together.

Friday, February 8, 2013

Little and Lovely

I took this photo two years ago today. She was 10 weeks old. My journal entry from that day talked about how Julia was awake and alert more that day and how Isaac and I decided to take photos of her all in pink on the pink bean bag. She really liked the bean bag and how she could snuggle down into it and still look all around...
I miss my precious girl...so little and so lovely.

Wednesday, February 6, 2013

January Tree

February is already here, but I wanted to post pictures of Julia's angel tree for the month of January. Some of the ornaments were Christmas ornaments and some were after Christmas ornaments and some were special gifts. I really love how this tree came together!

This "noodle" angel ornament was made by our neighbor G when Julia was born. Her first ornament! It will always be special. Thank you, G!

This angel ornament was made by my friend and fellow trisomy mom, C. She decorated a Christmas tree with lots of these angel ornaments dedicated to our trisomy angels. Thanks so much, C!

This sweet ornament is also from a fellow trisomy mom (Little Firecracker) and friend, L. It has a feather inside that represents a feather from an angel's wing. Love it! Thank you, L!

And here is another lovely angel feather ornament I received from trisomy mom and friend, S. It includes Julia's name inside and also sweet charms and sweet words. Thank you very much, S!