Dancing in the Rain
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A Trisomy 18 Journey

Life is not about waiting for the storm to pass. It's about learning to dance in the rain. -- Vivian Greene

Sunday, March 10, 2013

Meet Grace

Hi, everyone. Today I invite you to meet Grace. Grace is her parents' first born child. Grace was diagnosed with trisomy 18 during the 21st week of pregnancy. Having a prenatal diagnosis sharply focuses the importance of the here and now. The time during pregnancy becomes even more precious. It may be the only physical time parents have with their little one. It is sacred time. Grace's parents cherished their pregnancy days. Her mom blogged. Her dad got a tattoo. They made memories like dressing Grace up for Halloween by painting her mom's cute pregnant belly. They took lots of maternity photos. They made sure to have 3D ultrasound pictures. They shared Grace and her story with friends and family. They chose her beautiful name, Grace Evelyn. Precious Grace was born still at 30 weeks. She was and is cherished. Beloved. Held. Missed. Her time on earth was much shorter than her family wanted, but her impact, her legacy, will be forever felt by all who are touched by her story. Her mom continues to blog about their journey. Please visit them and be touched by Grace's story at The Smith Family blog.


Jodie said...

Their story is so beautiful. Thank you for sharing this.

Kim Smith said...

Wow Jenny, thank you so much for sharing our story. You have an amazing and important blog. On behalf of all of our babies, thank you for keeing them alive.

Jodie - thank you!

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