Dancing in the Rain
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A Trisomy 18 Journey

Life is not about waiting for the storm to pass. It's about learning to dance in the rain. -- Vivian Greene

Wednesday, March 13, 2013

Annie's Story

Meet Annie. Annie was diagnosed with full trisomy 13. She was (and is!) so very loved. Her parents fought for her care and advocated for her. Her life was cut short when doctors decided they --and not her parents-- knew what was best for Annie when she was brought to the ER at the age of 80 days in respiratory distress. Since then, Annie's mother, Barb, has been the trisomy community's greatest advocate. She has partnered with physicians and ethicists and parents to challenge and change the assumptions in medical care associated with children with trisomy 13 and 18. She is doing just that. One study at a time. One journal at a time. One doctor at a time, if that's what it takes.
Here is a video of Annie's story. Please watch.


Debbie C said...

This is a powerful video! I am stunned at the choices made for Annie, but am glad that Barb is advocating for precious lives.

Jodie said...

Thank you for sharing this. Annie's life continues to change this world for the better.

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