Dancing in the Rain
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A Trisomy 18 Journey

Life is not about waiting for the storm to pass. It's about learning to dance in the rain. -- Vivian Greene

Monday, March 4, 2013

Meet Aaron



As Trisomy Awareness Month continues, I would like to introduce you to some precious children with trisomy. First, here is Aaron. Aaron has full trisomy 18 and is now 32 months old! Aaron is typical in many ways-- he is a happy, smiley two year old. He is a curious boy and likes to try new things. He loves his eight older brothers and sisters, and they adore him. He keeps his mommy on her toes! Aaron also has challenges brought by his extra 18th chromosome. He has a heart condition but it has not required surgery. In his first months of life he had trouble breathing and was found to have a floppy airway, or tracheomalacia. For that a tracheostomy was performed and he was placed on a ventilator to provide the support he needs to breathe. He also is fed through a tube like many children with trisomy 18. These procedures have allowed Aaron to grow very well!  He is thriving and bringing joy to everyone around him. To read more about Aaron, please visit his blog which is perfectly named "Compatible with Joy!"


3 comments:

helenasc said...

What a precious boy! Thank you for introducing us to him.

RebekahPeterson said...

Oh, thank you so much! Sending much love and hugs to your family. Floating kisses to heaven.

BR said...

Three cheers for Aaron! The photo is so festive! I've never seen a troll sock monkey before! What a fun stuffed animal you have, Aaron!

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