Dancing in the Rain
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A Trisomy 18 Journey

Life is not about waiting for the storm to pass. It's about learning to dance in the rain. -- Vivian Greene

Saturday, March 16, 2013

Meet Lilly

Today I would like you to meet another Lilly. This Lilly, aka Little Firecracker, was born on July 4 -- just 5 months before Julia. Her blog, Pray for Lilly, was one of the first I found after Julia was born. Lilly was diagnosed prenatally with full trisomy 18. Although her parents were told they would not have much time together, Lilly lived for 17 months! Lilly's family had the opportunity to celebrate over 500 days together. They celebrated all of Lilly's milestones. They celebrated holidays and birthdays. They took lots of pictures. They sought the best care for Lilly and traveled out of state to get the heart surgeries Lilly needed. Lilly was a huge inspiration to me during Julia's life. Seeing her smiling face in so many photos gave me much comfort and hope. Like Julia, Lilly brought her family much joy!
Lilly went to heaven the night before Julia. Her mother and I like to imagine them there together-- our little two year olds running free and happy. Lilly's mom continues to blog about Lilly and their family. Their family continues to be a great encouragement to us in our journey. Their oldest daughter writes to Sydney and sends her sweet Julia remembrances. We hope to all meet in person someday! To learn more about Lilly's sweet life, please visit Pray for Lilly.


Jodie said...

Another beautiful Lilly! I like the thought of Julia and Lilly together in a lovely place.

BR said...

What an amazing gift God gave you by connecting your families together during the time your sweet babies were here. I'm so thankful your families have each other! Lilly is lovely.

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