Dancing in the Rain
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A Trisomy 18 Journey

Life is not about waiting for the storm to pass. It's about learning to dance in the rain. -- Vivian Greene

Friday, July 27, 2012


Our sweet friend, Isabella, recently left this earth for heaven. She was 7.5 months old and such a fighter! She, like Julia, had trisomy 18 and an associated heart condition. She had open heart surgery in April but the surgeons were unable to repair everything. Her little heart just could not keep up with her strong spirit.

Isabella came into our lives nearly two months after we lost Julia. Meeting her and her family and getting to know them was like a healing ointment on my wound of grief. I felt as though I was still fighting for Julia by helping Isabella and her family in any way possible. I was also captivated with her as soon as I met her. She was a feisty little girl who knew what she wanted and what she did not want. She was and is inspiring and strong and so well loved. Thank you to her parents, Patricia and Randy, for sharing Isa with me and my family. We love her and are grateful to know her. She is with our Julia now...


BR said...

precious baby. thank you for introducing me to her. i look forward to meeting her one day.

Anonymous said...

Thank you so much for being part of Isabella's life and remember her mean a lot to us
Thank you for your kind words

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