Dancing in the Rain
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A Trisomy 18 Journey

Life is not about waiting for the storm to pass. It's about learning to dance in the rain. -- Vivian Greene

Sunday, July 31, 2011

A New Direction

Our plans have changed. In a good way. Julia has been on "comfort care" and enrolled in hospice since birth. That decision was made based on doctors telling us that she would only live days or weeks. Julia, however, had other plans. Yesterday she turned 8 months old! She is quite the little fighter, and we want to fight harder for her. So, no more hospice. We are seeking a second opinion on her heart and will find out if anyone can and will operate. Then there's a whole list of specialists to see and therapies to schedule. The number of appointments and associated decisions is daunting, but it feels good. Why? Because we are choosing hope and choosing life. Just like Julia. We love you baby girl.



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