Dancing in the Rain
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A Trisomy 18 Journey

Life is not about waiting for the storm to pass. It's about learning to dance in the rain. -- Vivian Greene

Sunday, September 25, 2011

First Cold of the Season

We have had a busy week. Last weekend the in-laws were visiting, and Marc was traveling. Then on Tuesday night, Julia started getting congested. By Wednesday morning she had a yucky cough, a runny nose, and a diminishing appetite. (No fever though, whew!) All of that makes for a restless but tired little baby. I rearranged all of Wednesday's activities to be able to keep Julia home and stay home with her all day-- very thankful for the carpool assistance! The next day Julia's congestion was a bit better, so we decided to keep the cardiology appointment that had taken me 7 weeks to get. (No new info there. Surgery also not recommended by the new doctor.) That was a long and exhausting appointment for all of us -- especially Julia. She needed rest, but that's so hard to get when you are so congested! When she would finally fall asleep she would breathe peacefully, and then she would get so mad trying to breathe through her nose while awake. On Friday we had another guest arrive -- a sweet lifelong friend of mine who came to meet little Julia. Julia was eating better that day but was still not quite herself. During the night she seemed to take a turn for the better. I noticed this because she began playing with her hands. She does this a lot, but while she felt bad she didn't do it much at all. Her appetite picked up and on Saturday she continued to feel a little better. Occasionally, though, all of the drainage would catch up to her and give her coughing fits. We were glad to have oxygen to help her get past these fits. Today she looks much better and is eating well. Maybe a little more sleep is in our future!
Today is a big day for Julia-- she is 300 days old!! Way to go, little girl!! We love you!

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