tag:blogger.com,1999:blog-2403216503768229180.post1895232172026943659..comments2023-06-20T10:01:24.272-04:00Comments on Dancing in the Rain: 18 Things You Should Know About Trisomy 18Jennyhttp://www.blogger.com/profile/15373019731886842146noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-2403216503768229180.post-40961256981913419792016-01-10T17:24:16.044-05:002016-01-10T17:24:16.044-05:00My aunt is 47, and has Trisomy 18. I'm wonderi...My aunt is 47, and has Trisomy 18. I'm wondering now if she is the oldest living person with Edward's syndrome. Anonymoushttps://www.blogger.com/profile/10615021089166282546noreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-23073260520389645862014-11-11T04:48:48.382-05:002014-11-11T04:48:48.382-05:00Our baby was born with Trisomy 18 in 1985 but live...Our baby was born with Trisomy 18 in 1985 but lived only four months. "It was the best of times and the worst of times..." We experienced both the 'agony and the ecstasy' of loving a very special child. Hannah was a precious gift and we will always be grateful for the brief time we spent together. I know she is with Jesus right now and I'm looking forward to the day when we can be re-united with her in His Heavenly Kingdom. My heart goes out in love to those of you who are still journeying with your special child. Meg Bramwellhttps://www.blogger.com/profile/13223292379075260872noreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-25199761691231610652014-02-26T14:18:22.797-05:002014-02-26T14:18:22.797-05:00My parents have been told by the Dr's that my ...My parents have been told by the Dr's that my sister at the age of 38 is the oldest living known to the medical community! Shr is fluent in sign language although she does not cook her own food she does feed herself.. She learned to walk at about age 4..The doctors have no theory other than the amount of love she recieves from her mother and father plus her 5 siblings.She ha had 3 open heart surgeries and given a St. Jude valve on the 3rd surgery which has continued to operate well beyond it's expected life cycle! She is a todler in the body of a 38 year old woman is well aware of her surroundings! So much so that when you think she is not paying any attention to you and you look away for a moment you may be surprised to see her standing in front of you looking for you to share whatever you may have lol..love respect and prayers go a long way! My parents are now in their mid 70's the rest of her children have moved out and started families of their own myself included and none of our children have any such defects! Although it is a tough life for my parents they pray every day for one more day with her.. taking on a child with trisomy 18q is no small task! Add in 5 other children I give my parents all the credit in the world for their countless sacrifices..John C.https://www.blogger.com/profile/02045377967176229150noreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-65945997845072744972013-10-21T06:58:38.545-04:002013-10-21T06:58:38.545-04:00I had a son with T18 that past away after only 3 d...I had a son with T18 that past away after only 3 days.Every second with these Angels are a magnificent blessing.Please continue to blog about T18 to educate and motivate more research. Our children deserve it.Hugs and prayers to all the T18 families. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-91746507626486943122013-07-30T15:16:05.047-04:002013-07-30T15:16:05.047-04:00I have sister with trisomy 18, she is 24 now. By t...I have sister with trisomy 18, she is 24 now. By the way, she can walk and read.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-88804612022785266662012-03-26T09:51:22.056-04:002012-03-26T09:51:22.056-04:00Hi. Im doing soem research since this afternoon we...Hi. Im doing soem research since this afternoon we were told that our daughter is likely to have the syndrome, since her wrists are contracted. I didnt know about the peculiar way of contracting the hand, so this afterrnoon I didnt pay attention to fingers position in the ecography. Tomorrow amniocentesis will be done. Thank you for helping me to see things in such a different way/ Now I understand that, if my daughter has the syndrome, it means that I have been blessed, in a different and special way. Julia made the best desition by choosing you to receive her.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-92010356262454486282012-03-19T10:45:23.805-04:002012-03-19T10:45:23.805-04:00Thank you for helping us understand more and to be...Thank you for helping us understand more and to be aware. I know little Julia's life has changed you and your family forever.Sandihttps://www.blogger.com/profile/12656705044382934953noreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-87089802382805899952012-03-19T10:03:00.895-04:002012-03-19T10:03:00.895-04:00Thanks for sharing your story and your family.Thanks for sharing your story and your family.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-73232681091185569572012-03-19T09:22:29.469-04:002012-03-19T09:22:29.469-04:00These are very good key things for people to know....These are very good key things for people to know.Jenniferhttp://www.bamboophilosophy.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-2524562466817691382012-03-19T00:12:17.421-04:002012-03-19T00:12:17.421-04:00Wonderful. Blessings.Wonderful. Blessings.Janhttps://www.blogger.com/profile/09708470988972385852noreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-15145259928341160112012-03-18T23:46:13.563-04:002012-03-18T23:46:13.563-04:00As blessed as you were to have her in your lives s...As blessed as you were to have her in your lives so too was she blessed to hav all of you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-14399659926894942422012-03-18T22:13:25.465-04:002012-03-18T22:13:25.465-04:00Im aware. My sympathies and thanks for your openne...Im aware. My sympathies and thanks for your openness.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-45127416730694815972012-03-18T20:17:14.086-04:002012-03-18T20:17:14.086-04:00Thank you for sharing, your family is beautiful!Thank you for sharing, your family is beautiful!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-12731121704166811512012-03-18T19:56:56.042-04:002012-03-18T19:56:56.042-04:00So beautfulSo beautfulAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2403216503768229180.post-79620896488736645132012-03-18T19:08:48.144-04:002012-03-18T19:08:48.144-04:00This is such a good post! I put a link to it on m...This is such a good post! I put a link to it on my Lilly's blog. :)Lisahttps://www.blogger.com/profile/06306217651417023803noreply@blogger.com